8/10/2020

Bucket Lists

 Bucket Lists is my latest published article.

I feel weird with the traditional bucket list concept.

My bucket started out empty. I fill my bucket with wonderful memories and experiences. When my bucket gets full, I'll get a bigger bucket or another bucket and start over again. Click HERE or the article snippet below to read the article.


7/01/2020

My Chemotherapy Theme Song 2020, TESLA - Breakin' Free

There have been many points over the last 35 years when Tesla has had the right song at the right time to provide the perfect soundtrack to my life. Today, it's Breakin' Free, originally released in 2008. This evening was the premiere of their newest Home to Home TeslaQuarantined video.  They did it gain, perfect timing for me.
 
Many songs are written with a certain situation in mind. But music is art. The listener can interpret the lyrics and the feeling the music gives them any way they want.

These lyrics helped me through a breakup in 2009.

In 2020, they are helping me to break free from my new cancer progression and to start my next lung cancer treatment chapter. 

I don't care what you say
You'd better get out of my way.
I'm tired of wastin' my time,
Now I'm breakin' free....

I always knew the day would come
When everything's coming undone
Now I've made up my mind, I'm breakin' free.....

Everything's coming undone.  The cancer has formed a new mutation and my current targeted therapy can't keep my lung cancer 100% under control.  It's time to break free and add additional iv chemotherapy treatments to control this newest growth and spread.

6/20/2020

GO2 Foundation Virtual 5k Your Way 2020

June 20, 2020
Took Laynie on a #virtual5k today. #GO2SummerJam2020 #beatlungcancer #lcsm
#GO2Foundation #lungcancersurvivor #stage4lungcancer


6/17/2020

Opportunity is Knocking Part I

Advocating on Capitol Hill

I spent the last several days preparing for and participating in the Day of Action for the 2020 GO2 Lung Cancer Virtual Summit.  I had the opportunity to be a Co-leader for Team Colorado.  I helped prepare and organize our team of 7 with 5 lung cancer survivors including myself, and 2 lung cancer advocates from the International Association for the Study of Lung Cancer (IASLC), which is headquartered in Aurora, CO, just outside of Denver.

Yesterday was our Day of Action.  If we were able to travel to Washington, D.C., it would have been the day hundreds of lung cancer survivors, caregivers and advocates stormed Capitol Hill to attend a day's worth of meetings in our Senate and House representatives' DC offices in-person.

COVID-19 has changed the landscape of Washington, D.C. and our whole lives.  But an idea that has come up more than once is, "Lung cancer doesn't stop for COVID-19 and neither does the need for more research."  It can't stop lung cancer advocates either.  We prepared for our meetings via Zoom and held our congressional meetings virtually by telephone conference calls to our DC contacts on Capitol Hill.

I will never say it's easy to attend these meetings in-person or by phone to ask for $20 million dollars.  But as I approach the end of FDA approved targeted therapies and I don't know if there will be a proven treatment option available to me, the ask for funding to increase lung cancer research is more of a plea than a simple question.  It also helps the argument when your teamed up with five others in the same predicament.

The lung cancer community has been given the opportunity to educate Congress about lung cancer and to ask them to restore the Congressionally Directed Lung Cancer Research Program administered by the Dept of Defense to its original allocated amount of $20M in the FY 2009 Appropriations Bill.  The program is currently underfunded at $14M.  
In my home office aka sewing room on the Day of Action


GO2 set up an easy way to meet with members of Congress from our own homes without having to do anything more than practice our elevator pitch and share our personal stories about our connection to lung cancer.  No travel expenses, no risk of coronavirus.  What an amazing opportunity.  Yet, compared to the size of the lung cancer community, there was only a handful of survivors, caregivers and industry members that participated.

Part II Preview:

Click on the screenshot below for my latest lungcancer.net article.


5/21/2020

Starting Over, Catching up and Silver Linings

I'm back in the blog game. 

I didn't mean to take such a long break.  

I had plans for a major change to my blog layout and design for my return.  Instead of a major overhaul, I ended up making some subtle changes.  I'm guessing it looks the same to you.  It pretty much looks the same to me too.

To be honest about the break, I was mentally exhausted and needed a blog break after working on my Team Draft Lung Cancer Survivors Super Bowl Challenge fundraising campaign from January, 2019 until February 2020.  I was all in from November 1, 2019 until Super Bowl Sunday, February 2, 2020 and a then some after that.

I raised a grand total of $13,100. 

Team Draft and I were scheduled to present the $11,790.00 BIG CHECK to Lung Cancer Colorado Fund at the end of March.  We had to cancel the in-person presentation due to Coronavirus and the risks of exposure, restrictions and need for social distancing.

One year on my own.

I still don't feel comfortable going into details on my blog, another reason for the break.  It's time to, at least, let everyone know, I am single and have been for just over one year, officially.  The beginning of May, 2020 marked one year since removing myself from a very toxic relationship, situations and removing my ex from my home and life.  Breakups are crappy.  This one was, no doubt in my mind, The best change I could have made for me and Laynie and at the best time.  It gave me a renewed joy and a sense of freedom to be me, stroke deficits, cancer and all.  It also allowed me to make strides in my stroke recovery.  There was no more holding me back.  I made more improvements in my first couple months without my ex than I did in the whole year and a half after my stroke.  

Quarantine has been treating me well.

Instead of commenting here about the positives that have come to me in self-isolation, I wrote them in a lungcancer.net article, Self Isolation Silver Linings.  
Click HERE
or 
to read all the great things that have happened.

Illistration from lungcancer.net Self-Isolation Silver Linings

I'm a poet.

Another cool thing to come out of quarantine was the opportunity to participate in a Writing with Cancer Workshop offered by University of Colorado Cancer Center.  The above article was written before I participated in my first writing session.  Until Coronavirus, these were in-person, in Denver only, sessions.  They are now offering an every other week workshop via Zoom.  From two sessions, I've written three poems.  I will be sharing all of them with you soon.
A beautiful journal that was gifted to me.
My first poem

1/17/2020

Three Interviews and a Fundraiser

I've had several recent opportunities to share my lung cancer story and to advocate for more research funding.  It just happened that these three interviews were released so close together that I am sharing all with you in one post.

Team Draft Lung Cancer Survivors Super Bowl Challenge

I took the challenge this year.  I've been fundraising for Lung Cancer Colorado Fund to support the groundbreaking lung cancer research and treatment developments at the University of Colorado Lung Cancer program.  I earned the chance to go to the Pro Bowl to experience the events while I share my lung cancer story and advocate for awareness and lung cancer research funding.  Click HERE or the Pro Bowl logo to see a Team Draft video about my fundraiser.
 

You can help me reach my $50,000 fundraising goal .  Click HERE or the donate button to submit a tax deductible donation today. Donations can be made through Super Bowl Sunday, February 2, 2020. 
            

Living Lives with Lung Cancer website interview

LLwLC is a website focusing on lung cancer patients and survivors living and thriving in spite of their diagnosis.  I'm lucky enough to be one of the first to be interviewed.  I can't wait to see and read upcoming inspirational stories from fellow lung cancer patients. Click HERE or the zipline photo collage to read my interview.

Cincinnati radio/podcast interview

Melissa and I recorded this interview in November 2019.  I think it was originally an hour and ten or twenty minutes long.  The Medical Apocalypse doesn't really have a Cliff's Notes version.  Melissa did a wonderful job editing that down for the show.  you can hear the interview HERE or click this video.




12/03/2019

Joe Thomas Cameo Enouragement Dec 2019


This is so freaking cool!I  received my Joe Thomas Cameo today.  I requested encouragement for my Lung Cancer Survivors Super Bowl Challenge. 

I've watched this enough today I've lost count.  It  smilemakes me every time.  😁

12/02/2019

Cyber Monday Discount Giving Tuesday Purpose


Cyber Monday:

UPDATE: Use prmo coade GIVING10 for 10% discount.  Expires 12/7/19.
Peace Lungs & CLE shirts are available.  Place your order today.  Your Cyber Monday Promo Code is:CYBER10 Offer expires on Tuesday Dec 3, 2019. Click on a shirt or HERE to order.  All proceeds will be donated to the Lung Cancer Survivors Super Bowl Challenge.

Charcoal
Grey
Whiteout

Giving Tuesday

Giving Tuesday is coming. Please consider making a tax deductible donation to the Lung Cancer Survivors Super Bowl Challenge.

90% of funds go to life saving lung cancer research. 10% will help Team Draft continue their mission of changing the face of lung cancer with awareness and #survivorship and
providing lung cancer patients, survivors and their families exciting, memorable  moments away from medical appointments, cancer centers and living with lung cancer.

Your donation, of any amount,  may provide the funds needed to research or develop a new lung cancer  treatment. It will brighten my day, put a smile on my face and could possibly provide me with a trip to Super Bowl LIV, the Pro Bowl or the Taste of the NFL. These trips are awarded to the top three fundraisers. As I post this, I am currently in second place, only by a hair.  All three trips would be a trip to Florida in the middle of winter.  I would love some fun in the sun.

The Super Bowl Challenge has given me a focus with an obtainable goal, high but obtainable.  After the past couple years and recent months of recovering from personal devastation and difficult times, the challenge is a wonderful distraction with a possible outcome of a reward and trip away from my everyday reality, challenges and hurdles with lung cancer, progressive brain disease and recovering from a hemorrhagic stroke.


Please donate, share my fundraiser link with everyone
and put positive thoughts, prayers and energy into the universe. 

11/08/2019

What is LCAM?


November is LCAM. 

What does that mean?  

Here's my latest article for lungcancer.net that breaks it down and explains the campaign and it's origins.
Lungcancer.net

11/04/2019

2020 Lung Cancer Survivor Super Bowl Challenge Kickoff

Because of everyone's generosity, I raised $374 for my challenge.


I kicked off my 2020 Lung Cancer Survivors Super Bowl challenge fundraising campaign at the Cleveland vs Broncos game in Denver on Sunday, November 3, 2019.

It was a beautiful day.  The sun was shining, I got to introduce myself, share my lung cancer story, information about lung cancer Awareness Month and my participation in this year's Super Bowl Challenge.  So many tailgaters were more than generous with their time and money.  Browns fans and Broncos fans as well.  It goes to show, no matter which team we root for, we all agree that lung cancer (or any cancer)sucks.
More photos of #CLEvsDEN tailgating HERE.

I have until December 30, 2019 to reach my $50,000 fundraising goal.  Please donate HERE.  No amount is too small.  Every dollar counts, even when you make a minimum donation.


11/02/2019

Meaningful Football

Meaningful football to me this week:It's the Cleveland Browns playing a do or die game in Denver.  It means, possibly turning this season around in Week 9, although, a bit late in the season. It means, beating a top rival, again, at Mile High. It means bonding with my Browns football family while tailgating like we are in the Muni lot and watching the Browns in person instead of on TV.

It also means It's Lung Cancer Awareness Month, the kickoff of the Team Draft Lung Cancer Survivors Super Bowl Challenge.  I'm anxiously waiting the details of this year's challenge because I have set a $50,000 fundraising goal.  I'm super excited to get started!  Yes, fifty thousand dollars.  Top challenge participants have set the bar high.  It's time for me to join their ranks.  I'll share the details in a future post. 

Meaningful football 2015/2016 Season:The NFL preseason was underway in August 2015.  It was the dawn of a new era for the Browns. My football family and I were reunited after a long summer without football to watch games and cheer the Browns through another season.  Like many years before and every season after, we had hope, we believed.

I was diagnosed with stage IV, non small cell lung cancer during preseason on August 14, 2015.  At that point it was, by far, the most devastating, emotionally draining and excruciatingly difficult time of my life.  But what did I do the night before finding out the stage of my lung cancer and what my prognosis and treatment plan would be? I attended a Browns preseason game with the Pikes Peak Browns Backers in Colorado Springs, CO.

Meaningful football since lung cancer:
Dec 9, 2018

All football is meaningful to me since my lung cancer diagnosis. Even in the losing seasons, I am grateful for football and my Browns Backers family.  The Browns and the Pikes Peak Browns Backers have been with me since day one of my lung cancer diagnosis.  They have provided me with the support, needed distractions and events to keep my mind off of everything involved in a lung cancer diagnosis and fight.


I had a lot of fatigue, some pretty uncomfortable and painful side effects when I started my first line of lung cancer treatment.  I had times I was scared to leave the house. But I would get up, get dressed, in orange and brown, and still go to watch the Browns play with my local Browns Backers club.  That's how important the Browns are to me. That's meaningful football.

Tackling lung cancer, Dec 9, 2018

Meaningful football NFL Week 14, Dec 9, 2018:

It was a chance to go to Cleveland and an opportunity to attend the Panthers vs. Browns game with Team Draft. I live in Colorado.  Before December 9, 2018, I had only been to one Cleveland Browns home game.
A brief uncle and niece Dawg Pound reunion, Dec 9, 2018

That weekend was amazing.  Not only did I get to personally witness the Browns win at home, it was the 1 year anniversary of surviving a hemorrhagic stroke.  I got tears in my eyes when I was in the stadium and watched the Browns take the field that day. I get emotional today thinking about that moment.  I was alive. I was standing. I was walking. I made it through the toughest year of my life. Not only did I survive the stroke and make miraculous improvements in my recovery over the year, I did it all with late stage,  stage iv, terminal, lung cancer.
Please donate to the 2020 Lung Cancer Survivors Super Bowl Challenge









7/03/2019

Here WEGO


I started blogging about my experiences of being diagnosed and living with terminal stage IV lung cancer in 2016, approximately six months after my diagnosis.  I continued to blog as I was diagnosed in 2017 with Moyamoya, an incurable ultra rare brain disease, and after my hemorrhagic stroke.

The stroke was my third major life threatening incident in just over two years.  Somebody referred to my multiple diagnoses, struggles and deficits as a "medical apocalypse".  That term was more than accurate. I amended the name of my Peace Lungs and Happiness blog in 2018 to it's current title, Peace Lungs and Happiness: Anatomy of a Medical Apocalypse.

After three years of blogging, I am a nominee for the 2019 Best in Show Blog at the WEGO Health Awards.  It's an honor to be among my fellow nominees for this award.
About the WEGO Awards:
The WEGO Health Awards program was created to recognize and honor those making a difference in the online health community. It provides the opportunity for community members to thank and support the Patient Leaders and patient-centric initiatives they admire. Since its inception in 2011, the WEGO Health Awards have proven to be one of the best ways to connect the healthcare industry with top patient influencers. It is the only awards program that recognizes Patient Leaders across all condition areas and platforms, with over 4,000 nominations in 2018 alone!

I need your endorsement.
Winning this award will bring opportunities for me to present my story to others, promote patient advocacy and to share my patient expertise on patient panels, roundtables and at conferences while working with lung cancer, neurology and brain injury industry leaders.

At the end of July, the top three endorsed nominees in my category become automatic finalists for the award.

Please click HERE or go to https://awards.wegohealth.com/nominees/15977 to view my WEGO Patient Leader Profile.  From there you can endorse my nomination by clicking the Endorse Lisa Moran button under my profile pic.
Lisa Moran's Patient Leader Profile on the WEGO website

5/23/2019

Rollercoasters

Life with lung cancer is a rollercoaster.  But for me,  I've been on two or more different rides at the same time since my first major medical diagnosis of stage IV lung cancer in 2015.  With so much going on at once, I seemed to have tended to one ride while another ride was taking over my life, health and emotions.  And this all was happening without me recognizing that anxieties and depression had engulfed my thoughts, my physical being and my normally positive outlook on life.

I knew to keep my head on a swivel at construction job sites and while I delivered mail, working around traffic.  It recently came to light that I need to keep my head on a swivel in my medical life as well as my personal and  mental health lives as well.

HERE  is my latest article, Rollercoasters,  for lungcancer.netwww.lungcancer.net.

Click picture for article.