My latest published article and update. Click photo below to read full Lungcancer.net article.
I'm turning 50 next week. Can you believe it? It's hard for me to believe. Five years ago, with the odds totally against me, I said if I'm still alive for my 50th birthday, I'd throw a giant party and hire Tesla to play at the event.
Well, my birthday is next week and I officially have nothing more than a small outdoor lunch at a local restaurant planned for the weekend after my birthday.
Because of COVID 19, I'm at a standstill, just frozen in my tracks, not knowing what to do and what is safe to plan. Not only am I facing COVID19, I'm facing it with lung cancer, that puts me at higher risk for complications if I catch the virus and a super compromised immune system while my lung cancer treatments include iv chemotherapy.
Travel is out of the question. Oh, what would I do for a tropical destination and a beach with the sound of the surf and a big fruity drink in my hand while soaking up the sun!!!?!!! A huge party or get-together is not an option. I don't need to expose myself to too many people.
I'm now in the pre-planning stages of an October 2021 beach birthday party with a 5150 theme. Get it? It will be my 51st birthday and my 50th do-over. We better be able to travel safely by then.
No gag gifts please.
We have all seen the Over The Hill party favors and gag gifts. I don't need those. For my August cancerversary, I put out a serious request for stool softeners and laxatives. My friends came through. And I especially appreciated when one wished me a shitty day. I will say that chemo constipation is no longer an issue.
Help! I've fallen and I can't get up!
No need to get me the fake Life Alert necklace. I got the real deal after a scary couple of weeks and a traumatic experience.
My body was not tolerating the three chemo cocktail. I would end up sleeping for days on end without eating or drinking anything. Sleep and a few bathroom breaks was all I could muster up. I recognized this behavior and discussed adding fluids infusions a day after my chemo infusions and then a couple days after that.
One day, while home alone, and getting ready to go to a fluids infusion, I passed out a couple times. The second time I was moving from my hall bathroom to my bed to lay down. I woke up in my hallway in the doorframe of the room across from my bedroom. I was confused weak and scared. My last memory was collapsing on my bed. In reality, I had collapsed in the hall thinking the floor was my bed.
I've always worried about Laynie trying to wake me up in an emergency situation and accidentally scratching and hurting me in the process. Well, I put her to the test. And she was the perfect nurse. When I woke up in the hall, Laynie was right by my side, calm as can be, watching over me. She kept calm and watched as I jokingly told her to go fetch my cell phone so I could call 911. We've never practiced that and she doesn't know the words/command cell phone. I may have thrown in a joke about Timmy being in the well and she needed to go find help. I was too weak to even go down the stairs one by one on my butt. I was upstairs in the hall and my cell phone was down a floor in my livingroom.
I eventually got up enough strength to move to the bed. Laynie followed and stuck by my side as I slept more. I later made it downstairs to call the on call oncologist. At one point, I got violently ill.
Looking back, I should have called 911 at that time. The oncologist didn't get the severity of my condition. He advised me to drink some clear liquids, eat dinner and get a good night's sleep. I told him I could only sip Sprite and the thought of eating made me feel more sick. I was so weak and not thinking clearly at all. If I was, I would have caught on that he thought I was experiencing common chemo nausea and didn't understand if I sat up or stood up I felt lightheaded and/or like I was going to pass out again.
I ended up sleeping for three more days while Laynie kept watch over me.
I'm sure if I would have gone to the hospital, I would have been given fluids and quite possibly a blood transfusion and/or antibiotics. It took me two weeks to semi recover from this incident. And even then, my red and white bblood cell counts were too low for my chemo infusion. My chemo was postponed for a week to give me time to gain strength.
My biggest present
I've put off getting a port for my chemo infusions as long as possible. With my brain disease and history of stroke, any procedure with twilight or general anesthesia is risky. But I have problem tiny veins in my arms. And I'm done getting poked multiple times for each chemo and fluids infusion.
My birthday weekend tradition
I signed up as soon as registration was opened many months ago. At the time, I figured coronavirus would be behind us by now and a socially distanced outdoor event at Red Rocks Park would be possible.
Although, it's not the same as being there, I'll I'll be wearing my Run the Rocks shirt and medal and remembering the last six years of happy reunions and finishes this weekend.
You can register for the Virtual Run the Rocks and join my Peace Lungs & Happiness team. Click HERE or the photo below and scroll down to join my team.
Bucket Lists is my latest published article.
I feel weird with the traditional bucket list concept.
My bucket started out empty. I fill my bucket with wonderful memories and experiences. When my bucket gets full, I'll get a bigger bucket or another bucket and start over again. Click HERE or the article snippet below to read the article.
There have been many points over the last 35 years when Tesla has had the right song at the right time to provide the perfect soundtrack to my life. Today, it's Breakin' Free, originally released in 2008. This evening was the premiere of their newest Home to Home TeslaQuarantined video. They did it gain, perfect timing for me.
Many songs are written with a certain situation in mind. But music is art. The listener can interpret the lyrics and the feeling the music gives them any way they want.These lyrics helped me through a breakup in 2009.In 2020, they are helping me to break free from my new cancer progression and to start my next lung cancer treatment chapter.
Took Laynie on a #virtual5k today. #GO2SummerJam2020 #beatlungcancer #lcsm
#GO2Foundation #lungcancersurvivor #stage4lungcancer
Advocating on Capitol Hill
|In my home office aka sewing room on the Day of Action|
Part II Preview:
I'm back in the blog game.
I didn't mean to take such a long break.
I raised a grand total of $13,100.Team Draft and I were scheduled to present the $11,790.00 BIG CHECK to Lung Cancer Colorado Fund at the end of March. We had to cancel the in-person presentation due to Coronavirus and the risks of exposure, restrictions and need for social distancing.
One year on my own.
Quarantine has been treating me well.
I'm a poet.
|A beautiful journal that was gifted to me.|
|My first poem|
Living Lives with Lung Cancer website interview
LLwLC is a website focusing on lung cancer patients and survivors living and thriving in spite of their diagnosis. I'm lucky enough to be one of the first to be interviewed. I can't wait to see and read upcoming inspirational stories from fellow lung cancer patients. Click HERE or the zipline photo collage to read my interview.
Cincinnati radio/podcast interview
Cyber Monday:UPDATE: Use prmo coade GIVING10 for 10% discount. Expires 12/7/19.
Peace Lungs & CLE shirts are available. Place your order today. Your Cyber Monday Promo Code is:CYBER10 Offer expires on Tuesday Dec 3, 2019. Click on a shirt or HERE to order. All proceeds will be donated to the Lung Cancer Survivors Super Bowl Challenge.
Giving TuesdayGiving Tuesday is coming. Please consider making a tax deductible donation to the Lung Cancer Survivors Super Bowl Challenge.
90% of funds go to life saving lung cancer research. 10% will help Team Draft continue their mission of changing the face of lung cancer with awareness and #survivorship and
providing lung cancer patients, survivors and their families exciting, memorable moments away from medical appointments, cancer centers and living with lung cancer.
Your donation, of any amount, may provide the funds needed to research or develop a new lung cancer treatment. It will brighten my day, put a smile on my face and could possibly provide me with a trip to Super Bowl LIV, the Pro Bowl or the Taste of the NFL. These trips are awarded to the top three fundraisers. As I post this, I am currently in second place, only by a hair. All three trips would be a trip to Florida in the middle of winter. I would love some fun in the sun.
The Super Bowl Challenge has given me a focus with an obtainable goal, high but obtainable. After the past couple years and recent months of recovering from personal devastation and difficult times, the challenge is a wonderful distraction with a possible outcome of a reward and trip away from my everyday reality, challenges and hurdles with lung cancer, progressive brain disease and recovering from a hemorrhagic stroke.
I kicked off my 2020 Lung Cancer Survivors Super Bowl challenge fundraising campaign at the Cleveland vs Broncos game in Denver on Sunday, November 3, 2019.
More photos of #CLEvsDEN tailgating HERE.
I have until December 30, 2019 to reach my $50,000 fundraising goal. Please donate HERE. No amount is too small. Every dollar counts, even when you make a minimum donation.