Showing posts with label #acutetgarapy #moyamoya #stroke #rehab. Show all posts
Showing posts with label #acutetgarapy #moyamoya #stroke #rehab. Show all posts

1/17/2020

Three Interviews and a Fundraiser

I've had several recent opportunities to share my lung cancer story and to advocate for more research funding.  It just happened that these three interviews were released so close together that I am sharing all with you in one post.

Team Draft Lung Cancer Survivors Super Bowl Challenge

I took the challenge this year.  I've been fundraising for Lung Cancer Colorado Fund to support the groundbreaking lung cancer research and treatment developments at the University of Colorado Lung Cancer program.  I earned the chance to go to the Pro Bowl to experience the events while I share my lung cancer story and advocate for awareness and lung cancer research funding.  Click HERE or the Pro Bowl logo to see a Team Draft video about my fundraiser.
 

You can help me reach my $50,000 fundraising goal .  Click HERE or the donate button to submit a tax deductible donation today. Donations can be made through Super Bowl Sunday, February 2, 2020. 
            

Living Lives with Lung Cancer website interview

LLwLC is a website focusing on lung cancer patients and survivors living and thriving in spite of their diagnosis.  I'm lucky enough to be one of the first to be interviewed.  I can't wait to see and read upcoming inspirational stories from fellow lung cancer patients. Click HERE or the zipline photo collage to read my interview.

Cincinnati radio/podcast interview

Melissa and I recorded this interview in November 2019.  I think it was originally an hour and ten or twenty minutes long.  The Medical Apocalypse doesn't really have a Cliff's Notes version.  Melissa did a wonderful job editing that down for the show.  you can hear the interview HERE or click this video.




7/03/2019

Here WEGO


I started blogging about my experiences of being diagnosed and living with terminal stage IV lung cancer in 2016, approximately six months after my diagnosis.  I continued to blog as I was diagnosed in 2017 with Moyamoya, an incurable ultra rare brain disease, and after my hemorrhagic stroke.

The stroke was my third major life threatening incident in just over two years.  Somebody referred to my multiple diagnoses, struggles and deficits as a "medical apocalypse".  That term was more than accurate. I amended the name of my Peace Lungs and Happiness blog in 2018 to it's current title, Peace Lungs and Happiness: Anatomy of a Medical Apocalypse.

After three years of blogging, I am a nominee for the 2019 Best in Show Blog at the WEGO Health Awards.  It's an honor to be among my fellow nominees for this award.
About the WEGO Awards:
The WEGO Health Awards program was created to recognize and honor those making a difference in the online health community. It provides the opportunity for community members to thank and support the Patient Leaders and patient-centric initiatives they admire. Since its inception in 2011, the WEGO Health Awards have proven to be one of the best ways to connect the healthcare industry with top patient influencers. It is the only awards program that recognizes Patient Leaders across all condition areas and platforms, with over 4,000 nominations in 2018 alone!

I need your endorsement.
Winning this award will bring opportunities for me to present my story to others, promote patient advocacy and to share my patient expertise on patient panels, roundtables and at conferences while working with lung cancer, neurology and brain injury industry leaders.

At the end of July, the top three endorsed nominees in my category become automatic finalists for the award.

Please click HERE or go to https://awards.wegohealth.com/nominees/15977 to view my WEGO Patient Leader Profile.  From there you can endorse my nomination by clicking the Endorse Lisa Moran button under my profile pic.
Lisa Moran's Patient Leader Profile on the WEGO website

12/30/2017

A Place with no Space or Time

This will be as condensed as possible fipossible for my first  entry post stroke and I'm attempting to do this on my phone.
I optedfor the moyamoya bypass surgery to prevent probable stroke. The surgery was asuccessful in returning blood flow to my brain. But unfortunately, I did suffer a stroke just days after the surgery. What followed was emergency brain surgery to repair the bleed, two hospital stays, two infections, a coma, and ultimately, partial loss of the use of the left side of my body. I'mappy to report report that after a  21 day stay and acute physical, occupational and speech therapy, at Santa Clara Valley Medical Center in San Jose, CA, I'm able to walk, talk, make phone calls, and feed myself.

It's been incredible to have this happen and lose track of time and dates. We didn't even realize it was Christmas when it came and went. The original plan was bypass surgery on 12/9 with a 2-3 day hospital stay. I was going to fly home on 12/13.
Another way I lost track of time is the stroke took my ability to read a clock correctly. My brain is only processing the right side of the clock. It's a strange and confusing feeling to look at a clock and not know the time. This Is something you've done as a child. After ,40 some years, you look and you don't have to think. You just know the time. I've been working on retraining my brain to look at the clock
differently. It's getting easier. But it's actually a process to just look up at the clock and ,"know" what it says.