Showing posts with label #changingthefaceoflungcancer. Show all posts
Showing posts with label #changingthefaceoflungcancer. Show all posts

11/04/2019

2020 Lung Cancer Survivor Super Bowl Challenge Kickoff

Because of everyone's generosity, I raised $374 for my challenge.


I kicked off my 2020 Lung Cancer Survivors Super Bowl challenge fundraising campaign at the Cleveland vs Broncos game in Denver on Sunday, November 3, 2019.

It was a beautiful day.  The sun was shining, I got to introduce myself, share my lung cancer story, information about lung cancer Awareness Month and my participation in this year's Super Bowl Challenge.  So many tailgaters were more than generous with their time and money.  Browns fans and Broncos fans as well.  It goes to show, no matter which team we root for, we all agree that lung cancer (or any cancer)sucks.
More photos of #CLEvsDEN tailgating HERE.

I have until December 30, 2019 to reach my $50,000 fundraising goal.  Please donate HERE.  No amount is too small.  Every dollar counts, even when you make a minimum donation.


11/02/2019

Meaningful Football

Meaningful football to me this week:It's the Cleveland Browns playing a do or die game in Denver.  It means, possibly turning this season around in Week 9, although, a bit late in the season. It means, beating a top rival, again, at Mile High. It means bonding with my Browns football family while tailgating like we are in the Muni lot and watching the Browns in person instead of on TV.

It also means It's Lung Cancer Awareness Month, the kickoff of the Team Draft Lung Cancer Survivors Super Bowl Challenge.  I'm anxiously waiting the details of this year's challenge because I have set a $50,000 fundraising goal.  I'm super excited to get started!  Yes, fifty thousand dollars.  Top challenge participants have set the bar high.  It's time for me to join their ranks.  I'll share the details in a future post. 

Meaningful football 2015/2016 Season:The NFL preseason was underway in August 2015.  It was the dawn of a new era for the Browns. My football family and I were reunited after a long summer without football to watch games and cheer the Browns through another season.  Like many years before and every season after, we had hope, we believed.

I was diagnosed with stage IV, non small cell lung cancer during preseason on August 14, 2015.  At that point it was, by far, the most devastating, emotionally draining and excruciatingly difficult time of my life.  But what did I do the night before finding out the stage of my lung cancer and what my prognosis and treatment plan would be? I attended a Browns preseason game with the Pikes Peak Browns Backers in Colorado Springs, CO.

Meaningful football since lung cancer:
Dec 9, 2018

All football is meaningful to me since my lung cancer diagnosis. Even in the losing seasons, I am grateful for football and my Browns Backers family.  The Browns and the Pikes Peak Browns Backers have been with me since day one of my lung cancer diagnosis.  They have provided me with the support, needed distractions and events to keep my mind off of everything involved in a lung cancer diagnosis and fight.


I had a lot of fatigue, some pretty uncomfortable and painful side effects when I started my first line of lung cancer treatment.  I had times I was scared to leave the house. But I would get up, get dressed, in orange and brown, and still go to watch the Browns play with my local Browns Backers club.  That's how important the Browns are to me. That's meaningful football.

Tackling lung cancer, Dec 9, 2018

Meaningful football NFL Week 14, Dec 9, 2018:

It was a chance to go to Cleveland and an opportunity to attend the Panthers vs. Browns game with Team Draft. I live in Colorado.  Before December 9, 2018, I had only been to one Cleveland Browns home game.
A brief uncle and niece Dawg Pound reunion, Dec 9, 2018

That weekend was amazing.  Not only did I get to personally witness the Browns win at home, it was the 1 year anniversary of surviving a hemorrhagic stroke.  I got tears in my eyes when I was in the stadium and watched the Browns take the field that day. I get emotional today thinking about that moment.  I was alive. I was standing. I was walking. I made it through the toughest year of my life. Not only did I survive the stroke and make miraculous improvements in my recovery over the year, I did it all with late stage,  stage iv, terminal, lung cancer.
Please donate to the 2020 Lung Cancer Survivors Super Bowl Challenge









8/12/2017

What's in a Date?

August is a very momentous time for me. August 11, 2015 was the date I found out I have adenocarcinoma, non small cell lung cancer. Then I found out it was inoperable and incurable on August 14, 2015. This is the date I use as my Cancerversary date. Cancerversary~ the anniversary date of my lung cancer diagnosis.

Monday is my 2 Year Cancerversary. I really never thought I would still be alive today. The odds are against me, but I'm beating those odds every day, every hour.

I don't have too many not so amazing things to share over the last year. But the one thing is a fairly major concern. I was NED ( no evidence of disease) for approximayely 6 months. In October 2016 we started monitoring tumor growth activity in my upper right lung lobe. I had two blood biopsies to see if my cancer had developed a new mutation that is resistant to my current treatment. No information came back from the blood biopsies. I had a needle biopsy in May 2017. The biopsy was unable to collect a good sample and my lung clasped. A clasped lung equals my first overnight hospital stay.

I had radiation to this new tumor and I'm continuing with my current chemo pill/targeted therapy. Now we'll monitor this activity and see if the radiation did it's job.

One thing I must mention. We have lost many prominent people and advocates in the lung cancer online/social media community over the last year. These are people, putting themselves out there to educate, support and change the face of lung cancer. Every new death is a hard blow. They are missed terribly. I will continue advocating in their memory for much needed research to manage and end this terrible disease.

So many amazing things have happened to me since August 2016. These are just some highlights.
  • I have my own beer! I was able to attend the keg tapping party in Dayton, OH for Lisa's Luck Amber Ale.
  • I worked with the American Lung Association and participated in an award winning video to educate and spread  information about the importance of tumor testing.
  • I shared my story at the Denver Lung Force Walk.
  • I checked an item off my bucket list. I sewed my own dress and entered myself in a pinup contest. I was the first runner up and won prizes.
  • I ran the Run the Rocks 5k and turned 46 in the same week.
  • I participated in a Lilly Pharmaceutical advisory board and got to meet my lung cancer bff.
  • I entered the Team Draft Lung Cancer Survivors Super Bowl Challenge...and I won a trip to Houston the week of Super Bowl and attended the Taste of the NFL.
  • Thanks to Do It For The Love, I attended a Social Distortion concert in Denver, was given the VIP treatment and got to meet the band.
  • Because I was a first time attendee, I was granted a full travel scholarship to Washington, D.C. to attend the Lungevity Hope Summit.

I can't wait to see what comes to me between now and August 2018. With your help I may be able to add Lungevity Hope Summit 2018 to next year's list. Please help me celebrate surviving another year with stage iv lung cancer and make a donation. If I reach my fundraising goal, I can qualify for a full travel scholarship, attend the summit and spend time with my long distance lung cancer friends.

2/26/2017

We are gathered here today to get through this thing called life...

Yesterday was a bittersweet day. Lung cancer has a lot of ups and downs.

Elizabeth Dessureault lost her life to lung cancer yesterday.
Elizabeth Dessureault, wife, mother, lung cancer advocate and fighter
She was so young and vibrant. It's just not fair. She was very positive through all her ups and downs. She raised lung cancer awareness and spirits with her attitude and just breathe bracelets.
I have a From Lizzie's Lungs bracelet. It was a gift from another lung cancer survivor, Nicole Russell. Nicole's 1 year cancerversary was yesterday. A cancerversary is the one year anniversary of one's lung cancer diagnosis. She is beating the odds, changing the face of lung cancer and surviving stage iv lung cancer for over one year. Congratulations Nicole. I love you and want to thank you for your friendship and support on this roller coaster called lung cancer.

2/09/2017

Party With a Purpose

Eighteen years ago, in 1999, I wanted to start my own business. I dreamed of being a party/event planner. But I also wanted to work in the non profit sector. I came up with an idea of planning parties for fundraising events. An example would be a birthday party. It's your birthday. Instead of having a party and receiving gifts, you ask your guests to make a donation to the charity of your choice. I even named my business, Party With a Purpose. But I had just moved to a new state. I was not familiar with the town and vendors that I would need to collaborate with to plan successful events. Party With a Purpose never came to life.

Fast forward to 2017. I won a trip to the Taste of the NFL in Houston, TX. The Taste of the NFL rallies the country's top chefs and the NFL's greatest players to raise money in support of food banks throughout the United States.  They raise funds online, Taste of the NFL events hosted by individual NFL teams and the Super Bowl Taste of the NFL -The Party With a Purpose®.

Yes, Party With a Purpose!!!!! Something that I dreamed of so long ago is real. And I got to be a part of it. I want to thank Team Draft and the Lung Cancer Survivors Super Bowl Challenge for the opportunity to be a part of this year's Party With a Purpose.
I got choked up in my video because of the special meaning behind Party With a Purpose.






1/21/2017

Balancing Act

People that don't know me can't look at me and know I have stage iv lung cancer. On the outside I look perfectly healthy. There are mornings that I look at myself in the mirror and can't believe I have stage iv lung cancer. There are moments where I feel perfectly healthy.

Next week is my quarterly scan, blood work and follow up with my oncologist. This week is my quarterly freak out with scanxiety. This is the week I fight with my brain and body to think positive and feel good.

Like clockwork, just in time for my scan, I have issues that could be cancer related or it could just be nothing. It could be cancer progression or it could just be cancer treatment side effects. Or it could just be NOTHING.

In the past I've taken pride in myself for being forever optimistic. It's something that just comes natural. I don't have to force myself to think positive. It just happens. As an adult, anxiety and over-thinking hasn't been too much of an issue. That's until I was diagnosed with lung cancer. Now, at times, I find myself not sleeping enough. In those hours I should be sound asleep, I'm wondering and worrying about lung cancer and things that I have no control over.

At least I recognize there is a problem. So in the normal people, daytime hours, I keep myself busy. This is one of the reasons I'm so very thankful I'm able to work. While I'm at work and out delivering mail, I don't think about lung cancer or upcoming oncology appointments. I put on my uniform and I'm in what I call, "mailman mode". It also wasn't hard to keep my mind occupied when I entered the Team Draft Lung Cancer Survivors Super Bowl Challenge. Fundraising, posting updates and planning has kept my mind occupied since my last scan at the end of October.

Last year I followed the contest online. I cheered on my fellow Colorado lung cancer survivors while it gave me hope for my future and for the possibility of entering the contest myself one day. This year I entered and I won! I was the third highest fundraiser. I'm going to go to Houston the week of Super Bowl to attend the Taste of the NFL.
www.tasteofthenfl.com
Taste of the NFL, February 4, 2017,
Houston, TX
I take the good with the bad. It's a balancing act. This week the bad is simply manifested thoughts and cancer anxieties. The good is the anticipation of three wonderful, action packed, days in Houston with fun, food and the overall NFL experience. Who knows what next week will bring. Hopefully, a sigh of relief followed by three wonderful days in Houston.



12/17/2016

Good News Spreads Fast

My Lung Cancer Survivors Super Bowl Challenge is going well. At the moment, I'm in the running for the third place prize. I'm approaching the halfway milestone of my $10,000 fundraising goal.
#RallyAroundLisa
I've turned to social media to advertise and promote my fundraiser and spread awareness. One of these methods is Thunderclap. You can help promote  my Lung Cancer Survivors Super Bowl Challenge Fundraiser. By signing up you will help share a scheduled message on Twitter, Facebook and Tumbler.
Click HERE to join my Thunderclap.

What is Thunderclap?
Thunderclap is a tool that lets a message be heard when you and your friends say it together. Think of it as an "online flash mob." Join a Thunderclap, and you and others will share the same message at the same time, spreading an idea through Facebook, Twitter, and Tumblr that cannot be ignored.

I need the support of 100 people before December 26. With Thunderclap, I'm not asking for donations. I just need 100 people to go to my Thunderclap and click "Support". That's it. If I reach 100 clicks to support me, my Super Bowl Challenge will blast out over social media, one time, at the same time. There is potential of sharing my fundraiser with thousands of thousands of people. 
Click HERE to join my Thunderclap.
Thank you for your support.

12/01/2016

Giving and Receiving

Giving Tuesday was followed by Overwhelmed Wednesday. I expected a few additional donations to my Lung Cancer Survivors Super Bowl Challenge on Tuesday due to the nature of the day. But I never imagined I would receive nearly $2K in one day. That amount is amazing. I'm so grateful for everyone's generosity.

Giving Tuesday was a great big success. I created a one day Facebook fundraiser that will be matched by the Bill and Melinda Gates Foundation as part of their Giving Tuesday campaign. That means the $742 that was donated will become $1,484!!!! In addition to the donation made directly at my contest site, the Giving Tuesday donations totalled $1984!!!!

I have taken advantage of opportunities presented to me to represent the lung cancer community. One is the chance of going to the Super Bowl, the Pro Bowl or the Taste of NFL as a lung cancer patient advocate while raising awareness of lung cancer and the need for research funds.

At this point 50% of the donations collected will be be donated to the foundation of my choice, the International Association for the Study of Lung Cancer (IASLC). When my donation total reaches $5,000, 80% will be donated to IASLC.

Thank you to everyone that donated and shared my fundraiser links. Because of you I'm currently in the top running for the Lung Cancer Survivors Super Bowl Challenge.

The Facebook fundraiser was a one day event. But the Lung Cancer Survivors Super Bowl Challenge is not over. You can still donate until January 1, 2017.

Click the link on my blog or HERE to donate today.



11/15/2016

Super Bowl Challenge

I kicked off my Cleveland Fans Against Lung Cancer fundraising campaign this month. This is part Team Draft's 2017 Lung Cancer Survivors Super Bowl Challenge. This is a friendly competition between lung cancer survivors to raise funds for lung cancer foundations and cancer centers of the survivor's choice. The survivor that raises the most funds will win a trip to the Super Bowl in Houston, TX. Second place is a trip to the Pro Bowl in Orlando, FL and third place gets to attend  26th Annual Taste of NFL.

I set my fundraising goal high. I know with your help I can reach that goal. Lung cancer research funds are critical to my future and my quality of life.

My funds will be donated to the International Association for the Study of Lung Cancer in Denver, CO. I attended my first lung cancer event in September 2015. It was just two weeks after my stage iv lung cancer diagnosis. That event was the Pancake Walk Kickoff Breakfast for the World Conference on Lung Cancer in Denver. That day I was introduced to a handful of peopleand survivors in the lung cancer community. They gave me information, hope and advice that I will always remember and hold near and dear to my heart.

In Week 10 of  NFL season, the Browns have an 0-10 record. The Cleveland Browns may not be going to the Super Bowl this year. I may never get to see the Browns at a Super Bowl in my lifetime. But you could help send this Cleveland fan to the big game this year.

Together we can #tacklelungcancer.
I challenge you to make a donation today and find one (or more) person to match your donation.
Click HERE to make a donation today.

11/03/2016

How Not To Let Lung Cancer Win

I completed my Livestrong at the Y program. I tried not to miss any Livestrong days at the gym during the program. There was one particular day that I was feeling very down and tired. I just didn't have it in me that day. But my boyfriend gave me a pep talk. If you would put his pep talks in a book, the title would be, "How Not To Let Lung Cancer Win". Think in this instance he used my, no missed opportunities, motto to remind me that I should not stay at home on the couch that evening.

I went to class. It was yoga that day. Even when I was feeling some pain and I was run down from the day, I was there. I was able to fully participate. The instructor said some words that made quite an impression that day and impacted me for the rest of my life. We were holding a pose and she said something along the lines of, "this is how you are today. Recognize it. But it doesn't mean that's how you will be tomorrow."

In my day planner, in July 2016, there is one day marked with several stars. That was one of the very few days I had no pain, no fatigue, and I almost made it through the whole day without thinking or talking about my lung cancer. Those days are very rare. It's only happened a couple times since starting my treatment in September 2015.

I don't post too much about the bad days. My symptoms and side effects are intermittent. If I do complain, in the next few days things are different. My approach is the "life must go on" method. Almost like, putting the negatives in words will give them strength.

I had goals set for this fall that I've had to change or postpone to next year. Remember how excited I was about running again? I was only able to run a couple of times. At the same time as I started running again my side effects started kicking in. I was getting tired more easily. Stomach and digestive issues that I've been lucky enough to mostly avoid were happening often. I was experiencing new types of pain.  I was training to run the Run the Rocks 5k in October. If mental preparedness was all it took, I would have climbed the incline already. But the downside of feeling so well and living a half way normal life is feeling not so well at the same time.

The body and the mind are strange. Does the comfort of friends and family or the excitement of an opportunity/event overpower the negative effects and feelings caused by my lung cancer and treatment? The answer must be, yes.

Surrounded by my dearest friends and with the support of my family, I was able to complete and even run a good portion of the Run the Rocks 5k last month.
This is what Stage iv lung cancer looks like on a good day....and sometimes on a bad day too.




10/06/2016

How Lucky Am I?


"How lucky am I?" I couldn't begin to tell you how many times I've said that since my August 2015 lung cancer diagnosis.

From testing positive for the EGFR genetic mutation
to
living within 75 miles of one of the best lung cancer research facilities and oncologists in the world
to
the support of my friends and family and their friends and families
to
having the quality of life I have being able to live with stage iv lung cancer, how lucky am I?

In February 2016 my friend, Todd, asked me to taste test a beer he had brewed in bottles at his home. It was a very good beer. He said he wanted me to name the beer and he would brew it in my honor. After a couple days of brainstorming we came up with Lisa's Luck Amber Ale.
Who gets a beer named after them?
How Lucky Am I?

During the brainstorming sessions, we discussed the possibilities of using Lisa's Luck Amber Ale to spread lung cancer awareness. We also talked about maybe donating a portion of the proceeds to lung cancer research. But there are licensing issues and liquor laws that keep home brewers from producing and selling their beers, even if it is for charity.

It was brewing talent, not luck, that brought Lisa's Luck to life. Earlier in the year Todd submitted his Lisa's Luck Amber Ale entry in the Fifth Street Brew Pub's Homebrew Beer Contest. He won. Lisa's Luck Amber Ale was produced on a large scale.

The Lisa's Luck Amber Ale Tapping Party was on Saturday, September 17, 2016. My friends and family donated money to buy me a round trip ticket to fly from Colorado to Ohio to attend the event. I was able to meet some of the Fifth Street board members. They said how much they liked the beer, commented on Todd's brewing talent and added, they didn't know the lung cancer back story until after Lisa's Luck won the competition.
.

It was meant to be.

During the event I was able to share my story and make an announcement that I will be entering the Team Draft Lung Cancer Survivors Super Bowl Challenge this winter. This is a friendly competition among football fans that are surviving lung cancer while raising funds for lung cancer research. First place is a trip to the Super Bowl. Second is a trip to the Pro Bowl. Third place is a trip to The Taste of NFL.


Proceeds from the Fifth Street Lisa's Luck Amber Ale event will be the first donations to my Cleveland Fans Against Lung Cancer Campaign. The beneficiary of my donations will be the International Association for the Study of Lung Cancer.

Lisa's Luck Amber Ale is now available, for a limited time, at two Dayton area locations, Fifth Street Brew Pub in Dayton, OH and Sea Jax Tavern, in Kettering, OH. We heard news of interest from another Dayton area brew pub also.

What's better than drinking great tasting beer? Drinking great tasting beer for a great cause!

How Lucky Am I?

8/14/2016

Stage IV Lung Cancer/One Year Ago Today...August 14, 2015

One year ago today Jeremy and I went to the appointment to get the results from my pet scan. We scheduled it for lunch time. We had plans to break off of work, go to the appointment, get the info and plan of action and return to work.

With the ct scan only, we knew there was a large tumor in my upper right lobe and I was a good candidate for surgery. We thought we were going to find out when my surgery would be scheduled and what the recovery time would be. We got some very different and shocking information...

INOPERABLE, INCURABLE,
STAGE IV LUNG CANCER WITH METASTASIS TO THE SPINE

We did not return to work. That wasn't what we had prepared ourselves for.
Lisa's 8/14/2015 Facebook post, hours after diagnosis

Not many stage iv lung cancer survivors get to celebrate a one year CANCERversary.

I got to have one hell of a celebration last night.
F*ck lung cancer with LessThan Zero
at the 1 Year CANCERversary Party
Lisa doesn't play bass, but looked the part
while sharing her lung cancer story.

Lisa and Jeremy
I'm sure that out of the ones that get to celebrate the one year mark, not many are NED, like me.

I did not beat lung cancer. I am not cured. I don't get to celebrate winning. I celebrate surviving. My fight is ongoing and has no end.

I would love to say I'm no different than I was a year ago. But so many things have changed.
I've lost:
  • Energy
  • Half of my hair
  • My complexion
  • Friendships
  • A year of exercise and running
  • Fears
  • Life as I knew it
But I've Gained:
  • A new appreciation of life that I think I could I have only achieved by facing the possibly of death head on
  • Friendships
  • Fears
  • New traditions
  • New motto: No missed opportunities...When you have a 4 hour layover in Utah. Don't sit in the airport. Jump in an Uber and track down the best burger in Salt Lake City.





6/19/2016

Peace Lungs and Football

I ran into an old gym friend and postal customer this week while I was at work. It had been over a year since we last spoke.  He asked how I was doing.  I said I was fine but followed with, "You won't believe what happened to me. I still can't believe it myself." I proceeded to give him my most condensed version of my lung cancer story. I've got it down to a few sentences for situations like this.

"In August 2015 I was diagnosed stage iv lung cancer. My cancer has a specific genetic mutation. My chemo is a pill. My last scan showed no evidence of disease. I love my job, so I'm still working and things are going well."

I'm very public with my story on Facebook, Twitter and this blog.  My co-workers know about my lung cancer. Delivering mail is one of the few things I have that isn't connected to lung cancer and being sick. I've been very selective in telling only a handful of customers about my diagnosis. But the very few that do know are now my biggest cheerleaders. I know it's no coincidence that the people I chose were either a cancer survivor themselves, had a personal connection to lung cancer or had a close family member diagnosed with cancer after I shared my story.
 
I've had the privilege to publicly share my lung cancer story two times this month. The first was at the Denver Lung Force Walk. It was such an honor to share my story along with three other Lung Force Heroes. Every story you hear starts with the initial lung cancer diagnosis shock and continues with courage, bravery, inspiration and hope.
I was a member of the Lung Force Walk Committee. This was my first time volunteering on the committee. It was exciting to help plan and be behind the scenes of such a successful event.  Thank you to everyone that participated and donated. We exceeded our fundraising goal by raising over $40,000!!!
 
On June 17, 2016 I shared my lung cancer story at the Patient Advocate Breakfast at the International Association for the Study of Lung Cancer.
Patient Advocate Speakers with IASLC staff

At the breakfast I heard the perspective of lung cancer from a 10 year old boy, Coy, who's mother, Kathy Weber, is a lung cancer survivor. If that doesn't hit you in the heart, I don't know what will. Kathy and Coy also spoke of their Pro Bowl experience. Kathy was the second highest fundraiser for last year's Team Draft Lung Cancer Survivors Super Bowl Challenge. Kathy and her family won a trip to the Pro Bowl. I've been interested in this contest since the first time I heard of it.
 
Football and the Cleveland Browns have been a big part of my life. Even more so this last year. I received my lung cancer diagnosis during the NFL 2015/16 preseason. Jeremy and I attended the first preseason game together. At that point we knew I had non small cell, adenocarcinoma.

Browns preseason game, August 13, 2015
The next afternoon was the appointment when we found out it was stage iv. The Cleveland Browns and the Pikes Peak Browns Backers were there for me each week during the first couple months of testing to getting my full diagnosis and adjusting to my radiation and targeted therapy treatments. At the time I was scared to make plans and go places. I called going to games my "Football Therapy". Watching the Browns is not so therapeutic for my blood pressure.  But it felt good to get up and out of the house each Sunday. Treatment could take my energy. But it was NOT going to take away my Browns.
 
Another speaker at the breakfast was Chris Draft, founder of the Chris Draft Family Foundation and Co-founder of Team Draft. Chris' wife, Keasha Rutledge Draft, lost her life to lung cancer in 2011. He is my lung cancer advocacy and fundraising hero. I didn't hesitate to tell him either.  He's an inspiration to me to continue to raise funds and to share my story as often and as loudly as possible while spreading lung cancer awareness.