Celebrating the thrills of victory, reflecting on the agony of defeat and bounding obstacles while living life with terminal, stage iv lung cancer with leptomingeal disease, incurable, progressive brain disease, chronic kidney failure and hydrocephalus while recovering from a debilitating hemorrhagic stroke.
Giving Tuesday was followed by Overwhelmed Wednesday. I expected a few additional donations to my Lung Cancer Survivors Super Bowl Challenge on Tuesday due to the nature of the day. But I never imagined I would receive nearly $2K in one day. That amount is amazing. I'm so grateful for everyone's generosity.
Giving Tuesday was a great big success. I created a one day Facebook fundraiser that will be matched by the Bill and Melinda Gates Foundation as part of their Giving Tuesday campaign. That means the $742 that was donated will become $1,484!!!! In addition to the donation made directly at my contest site, the Giving Tuesday donations totalled $1984!!!!
I have taken advantage of opportunities presented to me to represent the lung cancer community. One is the chance of going to the Super Bowl, the Pro Bowl or the Taste of NFL as a lung cancer patient advocate while raising awareness of lung cancer and the need for research funds.
At this point 50% of the donations collected will be be donated to the foundation of my choice, the International Association for the Study of Lung Cancer (IASLC). When my donation total reaches $5,000, 80% will be donated to IASLC.
Thank you to everyone that donated and shared my fundraiser links. Because of you I'm currently in the top running for the Lung Cancer Survivors Super Bowl Challenge.
The Facebook fundraiser was a one day event. But the Lung Cancer Survivors Super Bowl Challenge is not over. You can still donate until January 1, 2017.
Click the link on my blog or HERE to donate today.
I kicked off my Cleveland Fans Against Lung Cancer fundraising campaign this month. This is part Team Draft's 2017 Lung Cancer Survivors Super Bowl Challenge. This is a friendly competition between lung cancer survivors to raise funds for lung cancer foundations and cancer centers of the survivor's choice. The survivor that raises the most funds will win a trip to the Super Bowl in Houston, TX. Second place is a trip to the Pro Bowl in Orlando, FL and third place gets to attend 26th Annual Taste of NFL.
I set my fundraising goal high. I know with your help I can reach that goal. Lung cancer research funds are critical to my future and my quality of life.
My funds will be donated to the International Association for the Study of Lung Cancer in Denver, CO. I attended my first lung cancer event in September 2015. It was just two weeks after my stage iv lung cancer diagnosis. That event was the Pancake Walk Kickoff Breakfast for the World Conference on Lung Cancer in Denver. That day I was introduced to a handful of peopleand survivors in the lung cancer community. They gave me information, hope and advice that I will always remember and hold near and dear to my heart.
In Week 10 of NFL season, the Browns have an 0-10 record. The Cleveland Browns may not be going to the Super Bowl this year. I may never get to see the Browns at a Super Bowl in my lifetime. But you could help send this Cleveland fan to the big game this year.
Together we can #tacklelungcancer.
I challenge you to make a donation today and find one (or more) person to match your donation.
I ran into an old gym friend and postal customer
this week while I was at work. It had been over a year since we last
spoke. He asked how I was doing. I said I was fine but
followed with, "You won't believe what happened to me. I still
can't believe it myself." I proceeded to give him my most
condensed version of my lung cancer story. I've got it down to a few
sentences for situations like this.
"In August 2015 I was diagnosed stage iv
lung cancer. My cancer has a specific genetic mutation. My chemo is a
pill. My last scan showed no evidence of disease. I love my job, so
I'm still working and things are going well."
I'm very public with my story on Facebook, Twitter
and this blog. My co-workers know about my lung cancer.
Delivering mail is one of the few things I have that isn't connected
to lung cancer and being sick. I've been very selective in telling
only a handful of customers about my diagnosis. But the very few that
do know are now my biggest cheerleaders. I know it's no coincidence
that the people I chose were either a cancer survivor themselves, had
a personal connection to lung cancer or had a close family member
diagnosed with cancer after I shared my story.
I've
had the privilege to publicly share my lung cancer story two times
this month. The first was at the Denver Lung Force Walk. It was such
an honor to share my story along with three other Lung Force Heroes.
Every story you hear starts with the initial lung cancer diagnosis
shock and continues with courage, bravery, inspiration and hope.
I was a member of the Lung Force Walk Committee.
This was my first time volunteering on the committee. It was exciting
to help plan and be behind the scenes of such a successful event. Thank you to everyone that participated and donated. We
exceeded our fundraising goal by raising over $40,000!!!
On June 17, 2016 I shared my lung cancer story at the Patient Advocate Breakfast at the International Association for the Study of Lung Cancer.
Patient Advocate Speakers with IASLC staff
At the breakfast I heard the perspective of lung
cancer from a 10 year old boy, Coy, who's mother, Kathy
Weber, is a lung cancer survivor. If that doesn't hit you in the
heart, I don't know what will. Kathy and Coy also spoke of their Pro
Bowl experience. Kathy was the second highest fundraiser for last
year's Team
Draft Lung Cancer Survivors Super Bowl Challenge. Kathy and her
family won a trip to the Pro Bowl. I've been interested in this
contest since the first time I heard of it.
Football and the Cleveland
Browns have been a big part of my life. Even more so this last year.
I received my lung cancer diagnosis during the NFL 2015/16 preseason.
Jeremy and I attended the first preseason game together. At that point we knew I had
non small cell, adenocarcinoma.
Browns preseason game, August 13, 2015
The next afternoon was the appointment when we
found out it was stage iv. The Cleveland Browns and the Pikes Peak Browns
Backers were there for me each week during the first couple months of
testing to getting my full diagnosis and adjusting to my radiation
and targeted therapy treatments. At the time I was scared to make
plans and go places. I called going to games my "Football
Therapy". Watching the Browns is not so therapeutic for my blood
pressure. But it felt good to get up and out of the house each
Sunday. Treatment could take my energy. But it was NOT going to take
away my Browns.
Another speaker at the breakfast was Chris Draft,
founder of the Chris
Draft Family Foundation and Co-founder of Team
Draft. Chris' wife, Keasha Rutledge Draft, lost her life to lung cancer in 2011. He is my lung cancer advocacy and fundraising hero. I
didn't hesitate to tell him either. He's an inspiration to me
to continue to raise funds and to share my story as often and as
loudly as possible while spreading lung cancer awareness.