A Clinical Study and a Collapsed Lung

Twenty-one days ago I participated in a clinical study. At one point I thought a clinical study and/or trial meant you are a guinea pig and even though you were seriously or terminally ill you got the placebo (sugar pill) or the trial drug that may or may not work. That's not the case. There are many different types and stages of clinical trials.

To learn more about clinical studies, CLICK HERE.

The study I took part in was to improve blood biopsies. There was no medication to take or multiple trips to the doctor to be examined or monitored. I simply had to agree to submit some vials of blood.

Twenty-one days ago I remembered what it was like to have to go through a surgical biopsy. For me, that was traumatic (my first surgery) and painful with a three week recovery. I submitted a few vials of blood to improve a non-invasive procedure to diagnose lung cancer. I was all for that.

If you thought I was on board twenty-one days ago, I am now the head engineer on that train that can't go fast enough. This week I was scheduled for an outpatient lung biopsy procedure. In and out, they send the tissue to pathology for diagnosis and we know what we are dealing with. It's a common procedure, but there are certain risks that are discussed before you start. One of those risks, ever so slight, is a collapsed lung. For the biopsy procedure they are putting a needle into your lung to capture tissue. In a sense, they are puncturing your lung. In most cases, after the procedure, the lung closes on its own and heals up at the puncture site. Not in my case. My lung collapsed.

Lisa at University of Colorado Hospital with DC, her #hopebot

I was admitted into the hospital and had to have a chest tube put in place to help "re-inflate" my lung. Although, not as traumatic as my first surgery, it was my first overnight hospital stay, EVER! 

I can't wait for the day when a lung cancer biopsy will be a simple office visit and a blood draw only.

Please note: these are descriptions of my medical experiences, how I understand them, in my laymen's terms. The procedures mentioned and defined may not be 100% medically accurate/correct or my doctors words. Thank you.

One Year Ago Today...July 24, 2015

One year ago today the Uncle Samta windsock was hung with care and the first toy donation was under the tree. I had last minute preparations to complete for our Christmas in July party that was scheduled for the next day.

One other thing I had to do that day was get a CT scan. This was the next step after something cloudy showed up on an xray two weeks before. I was to get the scan and have a follow up office appointment, a week or two later, with my primary care physician, Dr. Bird. I never expected a follow up phone call within hours of my scan appointment.

It was Dr. Bird. I can't remember the words he said. Whatever it was it sounded serious enough for me to grab the nearest pen and piece of paper and started writing words and notes from our conversation.

For other breathing issues I had a CT scan in 2008. So we had a baseline to compare to. When referring to my upper right lobe he used the words, mass and slow growing neoplasm. There were spots and nodules throughout both of my lungs. The nodules looked like an infection in the scan. I had been tested for TB. But it was days before we had the final results. There was a possibility I had tuberculosis. But I hadn't been out of the country or around anyone with TB. I discussed the party with Dr. Bird. I didn't want to spread an infection to my family and friends. And I didn't want to cancel the day before. He suggested I cancel the party. But if I decided to still have the party, I needed to keep my distance, wear a mask and not cough near anyone in case this was an infection. He referred me to a pulmonologist for the next test, a bronchoscopy, scope biopsy, to determine if the neoplasm was benign or malignant.

I had never heard the word, neoplasm. So I went to the internet to look up the definition. 

It was the the first time the word cancer had come up. I decided to stay away from the internet research until we knew exactly what we were dealing with. I didn't want to waste time and energy researching anything that didn't pertain to me and my condition.

I decided the show must go on. I didn't cancel the party. I didn't wear a mask. I had been around so many people at home and work. There was no way I had a contagious infection. Someone would have caught it by that point. We had fun, drinks and laughs that night. And we collected a bunch of toys for the Bob Telmosse Christmas Giveaway.

It was a good time and a much needed distraction that weekend.

One Year Ago Today...July 9, 2015

This is the first in a series of, "One Year Ago Today" posts.

One year ago today, on July 9, 2015, I met the man that ultimately saved my life.  One year ago today was my first appointment with my (then first and new) primary care physician, Dr. C. David Bird.

I explained to him I was having some shortness of breath and a persistent cough. I told him of my intermittent breathing problems and my brief, two appointment, history of going to two different urgent care type facilities and being told told, both times, (Dec 2014, June 2015) that my lungs sounded clear, when obviously to me they didn't feel clear.

At my Dr. Bird appointment I had an xray. That xray showed something in my upper lobe of my right lung. Dr. Bird said, although it may be the cause of my breathing problems, an xray wasn't enough to go on. He ordered a follow up CT Scan. The rest is history.

Why is it important to have a primary care physician? For me more frequent check ups, with one doctor, may have meant an earlier detection, possibly before a stage iv, inoperable, lung cancer diagnosis.

December 2014, I went to an urgent care type facility with what I thought was bronchitis. I was told my lungs sounded clear and my cough was from post nasal drip. Now, at the time I did have a terrible head cold. But at the appointment I made it a point to tell them that I coughed constantly, even without the head cold. I remember saying, "Jeremy says I cough all the time." No xray, no additional questions about my cough, no follow up suggested. I was given sinus meds to clear my head and sent on my way, like every other person with a head cold and post nasal drip that winter.

Fast forward to June 2015. Again, I thought I had bronchitis. I went to a different urgent care type facility. I told this Dr. that I felt like I had bronchitis and I coughed blood one time. I was told my lungs sounded clear and I had the tail end of a virus that was going around. No xray, no additional questions about my coughing blood, no follow up suggested. It really was one time, one cough, but I COUGHED BLOOD! I was given cough medicine and sent on my way, like every other person with that virus last summer.

It's so frustrating to think about stage iv lung cancer having the same symptoms of other, easy to fix, ailments.  It's also frustrating to think about the in and out exam offices and the lack of attention to individual patients. Or is it the lack of lung cancer education in the medical community altogether?

I owe my life to Dr. Bird.  Dr. Bird, a physician that listened to me and followed through until we knew exactly what we were dealing with.

One year ago today my life changed completely. It was just a few weeks later I would find out exactly how much it was going to change.

Scanxiety, Shock and Cebration

I had my 3 month follow up pet scan yesterday. I didn't have much scanxiety, anxiety about the results of the scan.  I had been feeling good and almost pain free for two full months. That's until this last Sunday when I started having horrible back pain.  I was so worried the pet scan was going to show progression in my spinal tumor since I was having 10-11 levels of pain on a scale from 1-10.

Lisa before her appointment
April 27, 2016

Well, I found out I'm NED!!!!!!  No evidence of disease!!!!!!  All the tumors and nodules in my lungs and spine are GONE!!!! And it's either a pulled or strained muscle in my back near the location of my spinal radiation.  I've never been so excited about back pain before.

It's surreal.  I was in shock.  My cheeks hurt last night from smiling so much yesterday. It's been a day since finding out and I don't think it's totally sunk in yet.

Lisa celebrating the wonderful news

I'm so very thankful for the prayers, love and support I've received from around the world.  I seriously believe that the prayer requests and positive energy that surrounds me are the reasons I'm considered NED within 9 months of my initial diagnosis. Truly amazing!!!!!!