It Takes A Village

I hope I don't forget anyone. I want to give a shout out to everyone that has had a hand in my diagnosis, treatment and quality of life over this last year.

First, my family and friends. This has been quite a year. And if I needed anything, you were there. Most of you dropped your personal life to be by my side. Thank you and I love you.

Again, I will edit this post and add to this list of I realize I forgot anyone.

Colorado Springs Family Practice
C. David Bird, MD

Pulmonary Associates
Steven Mohnssen, MD

Memorial Hospital Cancer Center
Lisa Allison, Nurse Navigator
Sayla Dennington, Social Worker
Victoria Cortez
Dr. Blum
Dr. Ridings

Bonnie J. Addario Lung Cancer Foundation

International Association for the Study of Lung Cancer

#LCSM Chat

American Lung Association in Colorado
Lung Force

University of Colorado Anschutz Medical Campus
D. Ross Camidge, MD, PhD

Lifespark
Sylvia
Cece
Judy

Livestrong at the YMCA

Team Draft
Chris Draft

In addition to this list, I want to acknowledge and thank my online support groups and lung cancer message boards. I won't list them, because I know I won't remember all the sites. Also, some of the groups are private. They are with me 24/7.

I can't imagine having lung cancer and going through this before social media. This lung cancer community has answered many questions, given plenty of advice, calmed many anxieties and raised my hopes.

Team Peace Lungs & Happiness was created just days after my diagnosis. I immediately had this sense of love that embraced me from all over the world. Team PLH is a global effort. I can't thank my family and friends enough for all your thoughts, prayers and support. Thank you for sharing my story with so many of your friends, colleagues and church congregations while calling on them to send me good thoughts and prayers. The power of positive thinking and prayer is a wonderful thing. Get ready for some exciting Team PLH announcements in the coming months.

The one person that has kept me together the most over the last year is my boyfriend, Jeremy. I say, "when we got lung cancer". I'm the one that has to go through the medical procedures, but we are in this thing together. He has been my rock, sounding board, counselor, doctor, voice of reason and shoulder to cry on. If we made it through the last 12 months, we can endure anything. He's a keeper.

There are no words for me to use that can thank the above people and organizations enough. Keep doing what you do so I can continue to live the greatest, happiest, longest, life possible.

THANK YOU FROM THE BOTTOM

OF MY HEART!

You all bring me Peace Lungs & Happiness every day!

T-Minus 10 Days and Counting

Join us for the Lung Force Walk at Centennial Center Park, Centennial, CO on June 11.

I'm excited about he upcoming Denver Lung Force Walk.  I was able to help brainstorm and plan the event while volunteering on the Walk Committee.  We have a $40,000 fundraising goal for this event. This is much needed funds for lung cancer awareness education and research.

Before the walk I will be sharing my lung cancer story along with other Lung Force Heroes. It's amazing to hear these stories of otherwise healthy, active, never smokers and non smoking women that have been diagnosed with lung cancer.

While we gather, walk and celebrate surviving life with lung cancer we will also be walking in memory of those that we've lost to this most deadly of all cancers.

Join Lisa's Team or Donate to Lung Force 

~ Lisa's Lung Cancer Story ~

In August of 2015, at the age of 44, I went from having a very active, healthy, life with a persistent cough and a little shortness of breath, to finding out I have stage iv non small cell lung cancer. At the time of my diagnosis my lung cancer had already spread throughout both my lungs and to my spine.

Lisa climbing the Manitou Incline
~June 2015

How could this be?  I had no pain. I was a city letter carrier on walking routes. I would go to runner's club once a week, after a full day of work. Just weeks before my diagnosis I climbed the Manitou incline and ran down the Barr Trail, for the first time. The incline has more steps than the Empire State Building.

My incline experience was a major red flag. When people asked about it, I would say it was easy, but couldn't breathe or I couldn't catch my breath. I heard myself say that over and over. A friend asked me to do it again and go with her for her first time. I said yes at first. But backed out. I needed to find out what my breathing problems were before doing the incline again. I didn't want her first incline experience to be a helicopter rescue for me.

I had to find a primary care physician. I explained my intermittent breathing problems. I told him I had gone to 2 urgent care type facilities 2 times in the last 6 months thinking I had bronchitis and being told my lungs sounded clear. He ordered an xray that day.

I'll let you know that up until this point I had avoided anything and everything medical. I still have my tonsils. I have my wisdom teeth. I never had a baby because it involves medical procedures.  With that being said, within 9 weeks I had:

• Xray
• CT scan
• Scope biopsy
• PET scan
• Blood draws
• MRI
• Surgical biopsy
• Appointments between appointments
• Received my full diagnosis

It was almost like new information and results were coming in every two weeks.

• I have a tumor? Ok, I can deal with that.
• It's cancer? Ok, I can deal with that.
• It's stage iv? WTF!!!!????!!!!

My lung cancer has no cure. Surgery is not an option. My cancer can be managed. Early on I asked a doctor how long can it be managed for. He said they can't give a time frame because of so many different drugs, new treatments and clinical trials. 

I was curious  and researched some information on my own.  The statistics I found were old,  but said I had a 3 to5% chance of surviving for one year.  I beat those odds!

 I joke that I got into lung cancer on the ground floor. 6 lung cancer drugs were FDA approved in 2015. 5 of those were after my diagnosis. That gave me hope.

I started my treatments with an oncologist and radiologist in the UC Health Network at Memorial Hospital Cancer Center in Colorado Springs. After experiencing uncommon treatment side effects I switched my oncologist to Dr. Ross Camidge at UC Denver at the Anschutz Cancer Center.

I had 10 radiation treatments to shrink the largest tumor in my upper right lobe. My cough and shortness of breath disappeared. I started my targeted therapy. Because my cancer is caused by the EGFR gene mutation, my chemo is targeted treatment in a pill that I take once a day.

My first follow up PET scan showed the large lung tumor had disappeared. All the tiny starlike nodules throughout both my lungs were gone too. Since then I had a one time, high dose, radiation treatment to the spinal tumor to help reduce some new pain it was causing.

Lisa with other lung cancer survivors at
the World Conference on Lung Cancer ~September 2015

After the initial diagnosis set in I experienced every emotion you can imagine.  I'm happy to be alive and for the support from my family and friends.  I have fear of the unknown. How long will my current treatment work?  I got hope after meeting several stage iv lung cancer survivors at the World Conference on Lung Cancer, which just so happened to be in Denver in Septemer 2015, just weeks after my diagnosis.  I was angry about my late diagnosis, the public stigma about lung cancer and the lack of research funds.

That anger took me to the internet. I found blogs, videos and twitter accounts from lung cancer patient advocates and the organizations they are involved with. I found the American Lung Association and Lung Force.

Lisa in her Team PLH hoodie
~September 2015

I created Team Peace Lungs & HappinessTM along with two of my oldest and dearest friends. I started this blog to post my own lung cancer info, treatment updates and personal accomplishments, along with my Facebook and Twitter posts.  Team PLH participates in fundraising and advocacy events.  The team comes together to spread lung cancer awareness and raise funds for much needed research to improve my quality of life and eventually fund a cure for lung cancer. 

Adjusting to lower energy levels was more of a mental than physical challenge. There were some days with pain and discomfort. I still went to work. Life hsd to go on. But instead of just living life day to day, I now appreciating every moment of it. I jumped at the chance for any and all experiences. My new motto: No missed opportunities.

As of June 11, 2018, my lung cancer found a way to resist my targeted therapy treatment.  I started a new targeted therapy drug,  Osemertinib (Tagrisso) on May 1, 2018.  I should have results of my latest ct scan in a few days. 

With good doctors, the latest treatments and my positive attitude, I continue to live an active, otherwise healthy as possible life... with lung cancer.



Viva Las Vegas ~April 2016