November 2018: I have posted about my different diagnoses throughout this blog. It's been a while since I've posted about being diagnosed with lung cancer.
It all started three years ago in August 2015. I was in the first years of a serious relationship with my boyfriend, Jeremy. We were passed that milestone moment when you realize your significant other is your forever person. We were planning our future together and talking about getting married.
It was also the beginning of my career as a letter carrier. By choice, I was on walking routes. I was walking approximately 35-40 miles a week. I would walk anywhere from 6 to 12+ miles a day. Carrying mail was more than a job. It was my career and my passion.
I would run at least one 5k (3.1 miles) a week after work with my runner's club. I was enjoying running for the first time in my life. There were times I'd run two or three 5k's in a week. Running wasn't just the annual 5k for charity any more.
As active and healthy as I was, I had a persistent cough and some random breathing issues. There were a few times between late 2014 and July 2015 that I felt a heaviness in my chest, something similar to bronchitis. Each time there seemed to be an acceptable explanation (post nasal drip, virus) to justify the breathing problems. It didn't seem too serious at the time.
When breathing issues interfered with exercising and running, I decided to get things checked out. I went to a doctor for my breathing problems. I had a chest x-ray. The result...a mass in my right lung. Further testing revealed a devastating diagnosis.
We heard the words, “inoperable”, “incurable”, “terminal”. What seemed to be minor turned out to be inoperable, incurable, stage iv lung cancer. It was late stage, stage 4, non small cell lung cancer. At the time of diagnosis, lung cancer had already spread throughout both lungs and to my spine.
I asked:
- How long to I have to live?
- How did I get lung cancer?
- What do I do now?
Statistics said I had a 3 to 5% chance of living one year. Lung cancer in young healthy adults, especially women, was on the rise. My lung cancer is caused by the EGFR gene mutation. It’s not genetic or something I inherited from my parents. It’s genomic, something in my DNA has changed and mutated.
The mutation meant I would have targeted therapy treatment instead of iv chemo.
The mutation meant I would have targeted therapy treatment instead of iv chemo.
Days before we heard, “incurable” and “terminal”. Now we heard something promising. I had a chance at living a normal life. It’s almost like, “normal life” echoed as it came out of my nurse navigator’s mouth.
Over the years my treatments have been targeted therapies and radiation treatments to my lung and spine. I take a chemo pill once a day that targets the mutation that is driving my cancer.
I was able to stay at work and continued living my active otherwise healthy life. Things were as normal as they could be with quarterly PET scans thrown in to monitor disease progression. Or in my case, we watched tumors and nodules shrink and disappear. the targeted therapy did it's job. I was No Evidence of Disease within 8 months.
Our moment of relief lasted 6 months. Then the nodules and tumors returned in my lungs. We monitored that growth for 10 months. In the mean time I had a bronchoscopy biopsy to test for a new mutation. I switched targeted therapies because I tested positive for the t790m mutation.
Life is back to normal, for now. Well, as normal as it can be with quarterly scans and blood labs thrown in to monitor for disease progression.
Our moment of relief lasted 6 months. Then the nodules and tumors returned in my lungs. We monitored that growth for 10 months. In the mean time I had a bronchoscopy biopsy to test for a new mutation. I switched targeted therapies because I tested positive for the t790m mutation.
Life is back to normal, for now. Well, as normal as it can be with quarterly scans and blood labs thrown in to monitor for disease progression.
x
